last authored: March 2013, Dave LaPierre
last reviewed:
Celiac disease, or 'gluten-sensitive enteropathy', is an allergy to the protein gluten found in wheat, barley, rye, and other grains.
Inherited, autoimmune, inflammatory enteropathy
It has an incidence of 1:80-140 in children of European descent. It usually presents at 6-18 months as wheat is introduced into the diet, but can occur at any age.
There is a delay in diagnosis of 4 years in the United States.
Prevalence as evidenced by screening is approximately 1:300, while the average prevalence on clinical diagosis is 1:3000.
Clinicians and patients are also increasingly aware of the condition of gluten intolerance.
Celiac disease tends to be diagnosed by gastroenterologists.
Diagnostic criteria are as follows:
There is a spectrum of celiac disease
classical (childhood): diarrhea, bloating, failure to thrive
late-onset (adult)
extra-intestinal: anemia, osteoporosis, autoimmune disease
silent: asymptomatic, but positive antibodies and abnormal biopsy
latent: positive serology, but negative biopsy
atypical
Sam is a 34 year-old man who has been experiencing increasing abdominal cramping and diarrhea.
Ethnicity plays a major role in epidemiology
Family history leads to a prevalence of 8-10% amongst first degree relatives.
Other conditions that can be associated with celiac disease include:
Whole wheat grain is composed of bran, germ, and endosperm, which contains complex carbohydrates, B-complex vitamins, and proteins. These proteins include gliadin and glutelin.
Maldigestion of grain constituents, leading to sumptoms of excess fluid and gas.
IgE-mediated allergy to one of the components, leading to nause and atopic symptoms.
Cell-mediated immunity to gluten (gliadin), leading to small bowel mucosal injury.
Allergy to gluten causes immune-mediated inflammation and destruction of absorptive villi.
There are a variety of steps in the pathophysiology of celiac disease:
IgA is not the offending antibody.
Classic celiac disease is initiated by poorly digested proline with glutamine (gliadin). This is normally deaminated by tissue transglutaminase. This leads to generation of negatively charged..
TTG is found in other tissues as well, leading to other clinical manifestations.
Neurological:
Cardiomyopathy
Hepatitis, cholangitis
Osteoporosis, fractures
Short stature
Arthritis
Dental abnormalities
Digestive
Diarrhea is the predominant symptom in less than half of people diagnosed; and many patients have a delay in diagnosis by many years.
Classical symptoms include:
Atypical
Wasted muscles, distended abdomen, flatt buttocks
clubbing
rickets
neuropsychoatric disorders - depression, psychosis
arthritis
osteoporosis
hyposplenism
dermititis herpetiformis
diabtetes
IgA deficiency
Down's syndrome
liver disease
thyroid disease
anemia can be present
Screening and diagnostic tests should be done while the patient is eating gluten, eg 2-4 pieces of bread daily for 4 weeks.
tissue transglutaminase (tTG) (95% sensitivity and 98% specificity)
The AGA suggests screening for the following groups
Up to 1/50 patients with CD are IgA deficient; this can result in false negative testing. IgA should be ordered.
IgG antibodies may be investigated as well.
IgE testing with prick or patch testing (especially if atopic symptoms are present).
other antibodies: antigladin, antiendomyseal
fat malabsorption studies
small bowel biopsy (scope and 4-6 biopsies)
HLA typing: DQ2 and DQ8 positive.
Endoscopy is required for definitive diagosis.
Consultation with a skilled dietitian
Education about the disease
Lifelong adherence to gluten-free diet
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Wheat, rye and barley must be avoided.
Oats must be avoided if they are not purified.
and perhaps oats must be avoided, for life in some cases.
inadvertent contamination can be a big problem
A gluten-free diet has been estimated to cost over 800 extra yearly (Atkinson et al, 1997).
If sensitivity to wheat products are suspected, without celiac disease, dietary strategies can include dietary enzymes and probiotics.
iron, B12
in severe cases, calcium, magnesium, and electrolytes
role of tTG screening is not known
biopsy should be repeated in 6-12 months
Between 7-30% of patients do not respond to a gluten-free diet. Causes can include:
Complications include:
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